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For parents and families

We offer suppport for parents and families affected by muscle-wasting conditions.
A woman living with LGMD and who uses a mobility scooter holds hands with her son while her husband holds his other hand
Care
A multi-disciplinary approach, with the input of specialists such as physiotherapists and occupational therapists, is often the best way to manage a musclewasting condition. Find out more
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Coping
How do we cope with the information? Find out more
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Development
What does the diagnosis mean for our child’s development? Find out more
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Diagnosis
How do we deal with the diagnosis? Find out more
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Future
What should we consider when planning for our family’s future? Find out more
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Schools
What about schools? Find out more
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Talking
A guide to talking with your child about their condition. Find out more
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Dream trips and wishes
This page outlines dream trips and wishes for young people. Find out more
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