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Just diagnosed

Hearing about a diagnosis or possible diagnosis of a muscle-wasting condition – whether for yourself, your child or somebody else you’re close to can often be a shock.
Three members of the MDUK helpline team taking phone calls.

Whether you’ve recently been diagnosed, or have been waiting for a diagnosis for some time, we’re here to help. We want to use our experience to help you and your family find out about the support that’s available so you can live as independently and as well as possible.

We know a lot of people living with muscle-wasting conditions. We also know what support is available through the NHS and what you’re entitled to.

If you’d like to speak to someone about a new diagnosis, please call our care and support team. They are great listeners, and if they can't help you they usually know who can. Our care and support team aren’t trained counsellors or doctors. 

Contact us
If you would like to contact us to talk about a recent diagnosis see here.
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Peer support for you
This sections details the various peer support options on offer and gives you the opportunity to be put in touch with someone who has been through a similar experience.
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Muscle-wasting conditions
Detailed information on all muscle wasting conditions is available here.
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Care plan
Muscular Dystrophy UK has worked alongside a range of specialist health professionals to develop a care plan that can be completed by yourself and your neuromuscular clinicians.
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Alert cards
Muscular Dystrophy UK has created condition-specific alert cards for different muscle-wasting conditions.
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Neuromuscular team
Information can be found here regarding what you can expect your neuromuscular team to assist you with.
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